It is often extremely difficult to accept that EDS is beyond a person's control. The unaffected see sleepiness as an insult, a rejection, or as evidence for lack of interest. Family members equate pathological sleepiness with their normal experiences of sleepiness, and mistakenly assume that, if the person really wanted to, they could "fight it off". As a result, family members with even a rudimentary understanding of the disorder, often conclude they're "just not trying hard enough". What must be clearly understood, is that EDS is often totally beyond a person's volition.To further confuse things, during occasional unique and/or stimulating circumstances, a person with EDS can sometimes remain animated, awake and alert, for brief or extended periods of time. Such circumstances can include unusual guests, experiences, or situations. This lends credence to an observer's assertions that, the alertness is simply a matter of self control, and that EDS can be 'willed away'. With EDS, the normal correlation between interest and wakefulness simply does not hold. Asserting someone can 'fight off' EDS, is as illogical as concluding no one needs sleep simply because nearly all people can fight off sleep during unique or emergency situations.
EDS needs
to be defended as the manifestation of a disorder, and not signs of a willful
lack of effort. Without firm and knowledgeable counseling on the part of the
physician, family members can easily fail to accept EDS as part of an illness.People
with EDS also may sleep for a full night of sleep and still wake up feeling
exausted, no matter what the circumstance. Staying up for a full night and sleeping
a couple of hours could have them feeling refreshed as well, their sleeping
patterns are totally random.One with EDS can also engage in activity one finds
enjoyable and not feel any onset of sleep until said activity ends.(1)
source
(1) wikipedia